Tuesday, January 28, 2014

Back to the specialists

With the results of her heart we went back to the specialists! They did another long ultra sound. She is growing! She is suppose to be 2 pounds and she is only one pound! She is in the 2% of growth! But she is growing which is so comforting! He said that if he had to guess what It is he would say it's a syndrome called Dandy walker Syndrome! I have never heard of this! There is different types ranging from sever to mild cases of it! This isn't a for sure thing this is just what he is guessing! He also said there is a 10-30% chance that she could have trisomy 18 and 13! These are the two syndromes I do not want her to have because they are fatal! And you don't know how long they will live with this. It could be hours days or a few weeks! He asked if I wanted to do an amniocentesis that day! My heart stopped I was not ready for that! I've never felt comfortable about doing that because there are risks doing it so I said no! Me and zach did some research and there is a blood test you can do that only detects trisomy 13,18 and 21! So he said that he highly recommends doing one of them! 
When I found out my little girl could have a syndrome I was so grateful and blessed that The Lord chose us as parents to have this sweet spirit in our lives and scared at the same time! My heart throbbed though not knowing what she could and couldn't do! What if she wouldn't be able to walk and run or talk! I just want her to be able to do everything she wants to in life! This little girl though if she has a syndrome will touch so many lives! She has already touched mine in so many ways! Even though this has been a hard time for us. It makes me want to become a better person and try hard in everything I do! If she has a syndrome she automatically has a spot in the celestial world.. How cool is that? It makes me want to do everything I can so I can return to her! This has been a very spiritual experience for me and I thank this sweet little girl for letting me get closer to The Lord! 

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